Friends With FOP

Sue noticed last night that most of Erin's right side is swollen.  Erin's right shoulder is swollen the most... so much so that you can't see her actual shoulder-blade.  The swelling in her shoulder feels very firm, but is not red at all.  She has swelling on the right side of her tummy and also on the right of her genital area, but both of those areas feel much softer, as if they are just filled with fluid. We talked with the doctors, and they agree that she should have a steroid, which is the usual call when a FOP flare-up occurs.  This ...

We've added a new photo gallery that's all about Erin!  Click on the "Photo Album" link on the site or visit this link: Erin's Photo Album Oh, and I've scoured the Interwebs for FOP information, and found other FOP patients with websites, news coverage, and general info about the disease.  There's lots of great information, and I can confidently say that this page has the most in one place that I've seen.   We're your one-stop FOP-shop! Click on "FOP Web Links" on the right, or click the link below: FOP Interweb links