Friends With FOP

Erin has been taking large doses of Naproxen (Aleve) for several days now.  The new swelling had not subsided so the genetic counselor called in a prescription for Presnidone (steroid).  We have learned through Erin that neither medication tastes very good.  With the Naproxen, I am able to squirt a little at a time into her mouth.  Although she doesn't like it, she cooperates.  Cooperation went right out the door with Presnidone.  We finally had some success using a small tube on the end of the syringe and squirting a little in the back but off to the side of ...