Friends With FOP

Melissa is one of our daycare parents and she has offered to look into possible fundraising options...even maybe organizing a non-profit in Erin's name.  A couple of ideas have been floating around about different fundraising events.  Melissa said she would love to hear from anyone who would be interested in helping out.  If we actually get a non-profit organized, we will need to have a formal structure in place such as board members.  If any of this interests you, you can leave a comment here or send me an email and I'll pass the info on to Melissa.  Thank you Melissa!!!

We received a wonderful inspirational card in the mail today from TVA.  Erin and the family has been placed on their prayer list.  Thank you Memaw (Grandma Retha) for the request! 

I talked to Dawn (genetic counselor) today. She said Dr. Kaplan sent her an email yesterday and that she would try to call him first thing tomorrow morning. Dr. Kaplan did mention that he wanted her genetic test results. Dawn called the lab in PA and they said the results will be ready on June 24th. We meet with Dawn on the 26th but hopefully we'll be notified of the results on the 24th. I don't think we'll new info tomorrow if Dawn talks to Dr. Kaplan. I have found a substitute to come in to run my daycare while ...