Friends With FOP

Today was an extremely tough day.  First and foremost, Dawn (the genetic counselor) called today around 5:30PM.  She confirmed that the lab saw in Erin's DNA the mutated gene associated with FOP.  No matter how much I could have prepared myself, the sadness is overwhelming.  I honestly feel that Erin is being robbed of all opportunities that a child should have.  Why do I feel like this is a death sentence?  She won't "die" from FOP but still... The good news is Dr. Kaplan wants to see Erin.  By the grace of God, our accountant stopped by today at 4:00PM to ...

Dawn from Children's Hospital Genetics called today.  Erin tested positive for the FOP gene.