Yesterday we had a long appointment with Dawn. We went over the “what not to do” and “what is okay to do.” Since information on FOP is all online Alan and I knew most of the information. However we learned a few things.
Alan asked about treating FOP with Celebrex. Basically Celebrex has the same functionality [...]
We have tentatively scheduled a garage sale for August 8th and 9th. All proceeds will go towards Erin’s treatment and medical bills. If you are in the Seattle area and would like to donate stuff you don’t need anymore, please feel free to contact me. We will take it off your hands and store it. [...]
My brother Mike was here at the house when we got the news that Erin’s test came back positive for FOP. He was a great help…he cooked a fabulous salmon dinner and spent time with the boys. Thank you, Mike!
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