While searching for more FOP information, I came across a book by Carol Zapata detailing her life with a FOP child.

Fortunately, much of the book can be viewed online here:

http://books.google.com/books?id=2fABz0oXllYC&dq=finding+magic+mountain+life+with+five+glorious+kids+and+a+rogue+gene+called+fop&pg=PP1&ots=6dRJPxXG3m&sig=Uc0Yz7HyH4m4VuUFQVqQJw2QJNw&hl=en&prev=http://www.google.com/search%3Fq%3DFinding%2BMagic%2BMountain:%2BLife%2Bwith%2BFive%2BGlorious%2BKids%2Band%2Ba%2BRogue%2BGene%2BCalled%2BFOP%26rls%3Dcom.microsoft:*%26ie%3DUTF-8%26oe%3DUTF-8&sa=X&oi=print&ct=title&cad=one-book-with-thumbnail#PPP1,M1

There’s a link to purchase the book, too.  I’ll be reading this so I can learn what to expect, and how to deal with the challenges we will probably face.

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