Wow! Thank you all for all the positive thoughts and prayers! We really do have an amazing circle of support around us. 
Our home phone has been ringing off the hook…it’s hard to find a handset that is fully charged. I have never seen my inbox so full of emails. All the grandmothers and neighbors have started separate prayer circles….I am just so grateful. We have not been all that religous but events like this make you think twice and hope that there is a higher power out there looking after your child. I have questioned, “Why my little girl?” But I am not ready to know the answer right now. I can tell you my hopes change day-to-day as we hear from the genetic counselor and actually see Erin’s flare ups. First I hoped that it wasn’t FOP. Now I am really praying for a miracle of sorts. I’ll even bargain for a trip to PA to see Dr. Kaplan.
We’re working hard on uploading pictures of Erin for every one to see. The site will transform as we go.
I really just want to thank all of you for your words, thoughts, and hugs (cyber hugs included). It’s amazing how much power a single email or phone call and even a voice message can hold. Our little family is just about to embark on a major life journey. One journey that will transform us forever. Thanks for being there for us. {{{HUGS}}}
