We had a pretty good weekend.  To start out, on Friday morning, Erin’s swelling had subsided on her back.  However we can now clearly see the new FOP bone that developed.  It looks very similiar to all the photos we’ve seen of FOP patients.  We’ll take a photo of her back an post it here.  The good news is is that she is no longer in any pain.  She stop taking the Aleve and Prednisone for now.

I think Erin has gone through another growth spurt.  I am wondering if the growth spurt brought on this last flare-up (a question for the doctors).  I bought her a new shirt a few weeks ago and I noticed it was a little short on her this weekend.  The protusion isn’t large enought to make a difference in her clothing so I am sure she has grown.  Erin isn’t even three yet and I bought her a SX size shirt over the weekend.  She’s now in a 5T in shorts/pants and a size SX in shorts in girl’s.  Wow…her growth rate is amazing.

This is our big week.  We should know the test results on Tuesday.  She also has a hearing test at Children’s on Tuesday.  Thursday we meet with the genetic counselor and she has a two-hour swallowing evaluation.�