Still doing more research. Many people with FOP don’t have extensive websites, but I found one that has EXTENSIVE information and tons of pictures of their son growing up.
The site (FOP Sweden) is in Swedish, but you can read the English translation by clicking here.
The absolutely amazing thing is that this child has the exact same protrusion at the back of the head as Erin did… you can see it in their photo gallery.
They have documented through photos all of the unusual lumps and swellings, which is exactly what Erin is going through. It is interesting to see what we’re in for… because everything up to this point is right on.
They even have pictures of Hugo’s hands and feet, which could be twins for Erin. Erin has found her hand twin!
