Sue noticed last night that most of Erin’s right side is swollen.
Erin’s right shoulder is swollen the most… so much so that you can’t see her actual shoulder-blade. The swelling in her shoulder feels very firm, but is not red at all. She has swelling on the right side of her tummy and also on the right of her genital area, but both of those areas feel much softer, as if they are just filled with fluid.
We talked with the doctors, and they agree that she should have a steroid, which is the usual call when a FOP flare-up occurs. This should reduce the swelling and fluid build-up.
There’s no way that this is all new bone… probably either a spur or the start of new bone that is irritating her muscles, causing her body to react. Her limited arm movement is more likely due to that it hurts rather than it being fused… Dawn (the genetic counselor) even commented that the MRI did not show extra bone in her chest.
So, anyway… Erin’s on the ‘roids. We’ll have to watch the ‘roid rage.
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