Friends With FOP

We’re still dealing with swelling on Erin’s right side of her back. She usually has a hard time getting comfortable when going to sleep and last night was a little more difficult than usual. The swelling has become worse and it has some black and blue markings. She has taken two doses of the steroid and has been taking the Aleve regularly. We’ve been able to crush the steroid and put it in peanut butter. This morning we tried chocolate syrup so that works just as good. We finally see (what we think is) her shoulder blade. I’ve been reading up on Lymphoma and it has similar symptoms as FOP but when we took another look at her back this morning….my stomach immediately knotted up. I have been hoping for a different diagnosis than FOP but it’s becoming more of a realization every day that this could very well be FOP as her body changes.