Alan and Erin went to a meeting with Northshore School District yesterday. Erin has been treated for physical therapy, speech therapy, and education through the Kindering Center which is a birth to three 
clinic. Since April, we’ve been working on transitioning her from Kindering into a private clinic but also see what services the school district could offer her. Erin had all her exit tests done in May and because of the test scores she did not qualify for district services. However the district told us that with a FOP diagnosis, everything changes. In August we will reconnect with NSD and look into the preschool option. Most likely Erin will go to preschool three days a week from 1:00 – 3:30. A bus will come to pick her up and drop her off.
All of this is great but I specifically remember the rheumatologist telling us that school may not be safe for Erin. I have read stories how the child has an aide with them all day to make sure they don’t get hurt. The past week has been so overwhelming. I do remember sitting in the hospital cafeteria after the meeting with the rheumatologist thinking we may have to home school her. This is just another item to put on the back burner until later.
