I guess a really good night’s sleep did Erin good. She was ready to go swimming from the moment she woke up. We made it to the waterpark about lunch time and she was totally into the wave pool.  I had to sit in the shallow end and let her sit in my lap. Today I [...]
We’re on day four on our vacation. I managed to successfully drag Alan camping. We did three nights at a KOA in Astoria, OR. We stayed in one of the Kamping Kabins. Not bad…just horrible mattresses. It was hard to get a good night’s sleep. This trip is for the family but mainly for the [...]
Erin had an appointment today with an occupational therapist at Children’s about a helmet. Ugh…I am so disgusted with the choices. They were the same helmets I’ve seen in other medical cataloges. I was really hoping to see something new. It was obvious that I wasn’t happy with the selection. The OT said I could try [...]
Earlier today I was scratching Erin’s back when I felt a couple new lumps that I had not recognized before. Sure enough she has begun to swell on her back but this time on her left side. I hate what FOP is doing to her body. Right now she’s happy and wanting to play. Probably by [...]
AUGUST 8TH & 9TH
WOODINVILLEÂ (location to be announced next week)
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HOW CAN YOU HELP???
Clean out a closet and donate your stuff!!!
We can pick-up and store anything you have!!
Volunteer your time to help our sale!
Come shop and find some “hidden” treasures!
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Contact Melissa Sprague: melissa2000@comcast.net or Suzanne McCloskey: suzanne.mccloskey@yahoo.com
FRIENDS OF ERIN KATE is a group of family and friends [future [...]
Past summers I had been able to take the daycare kids on field trips (summer concerts, playgrounds, wading pools, and spray pools). This year I knew we wouldn’t be able to b/c of the two new infants that enrolled in the daycare. Just so happens that I had no infants on Friday.  All I had were [...]
We got a surprise call on Thursday from the PT/OT clinic. A spot became available in the aquatic-therapy class. Yea!!! Alan took Erin to her first visit that same afternoon. Erin has been assigned to Lisa again. Lisa knows Erin’s medical history and was the one who recommended that Erin take the class.  Lisa recommend that wait until [...]
TVA has some of the most compassionate employees working for them. We received another lovely card from a co-worker of Grandma Retha. Thank you, Teresa. Your words and card mean a lot to our family. Thank you for thinking of Erin.
Now that the “shock and awe” aspect of Erin’s diagnosis is starting to fade I have had more time to get some of the administrative things done. I registered Erin with MedicAlert yesterday. Thank goodness another FOP mother gave MedicAlert permission to use her son’s information b/c I would not have thought of all the [...]
We had a nice long weekend. Alan and I hosted our neighborhood’s annual 4th of July BBQ. Neighbors started to gather around 4PM and by 11PM our street was covered with fire works and fire cracker debris. Erin held her own the entire evening. She found all sorts of goodies to get into. From whipped [...]
