Friends With FOP

We received two CDs with all of Erin's x-rays and scans done at Children's Hospital.  I posted them in the album as "X-Rays and MRI." 

For those of you who don't know, I own a technology and gaming website (www.ocmodshop.com).  I write about and cover technology, computers, video games, and just about everything in today's digital society. Today I came across a press release (read it here) about a Casual Games benefit.  All of the proceeds go to the Starlight Starbright foundation, which we are trying to tie Erin into.  So, since there's a link between helping Erin and the gaming industry, I'm gonna be all over it like white on rice.  Here's some poop about the Starlight Starbright Foundation: Starlight Starbright Children's Foundation When a child or teenager has a ...

The one phrase we hear many times a day, "Mommy, I want yogurt, cheese, baba please!"  Since May, she has had very limited opening between her teeth to slip food in to eat.  So she eats multiple servings of GoGurt (yogurt in a tube), string cheese, and lots of milk.  There is no doubt in my mind that this child gets her share of protein and dairy a day.  Yesterday she discovered an open bag of snack size raisin boxes.  I lost count on how many boxes of raisins she ate.  By bedtime last night her new phrase was, "Yogurt, cheese, ...