Friends With FOP

Here's a link that someone within the FOP community found.  It's an article about people in Australia who are diagnosed with rare diseases have a tough time getting the right medical care.  The link has sparked a great online conversation about "orphan diseases" and "orphan drugs."  Apparently there is a big difference on how rare diseases are handled within different countries. http://www.smh.com.au/news/health/sick-and-ignored-our-medical-shame/2008/09/06/1220121593204.html