Oh how I love Halloween! I always have the best intentions to really go all out on the house decorations. Unfortunately like the past Halloweens, we carved some pumpkins and then put out a self-serve candy bucket. Our children became Indiana Jones, Princess Liana from Barbie’s Diamond Castle (just in case someone didn’t know), and some [...]
When we were back east, I was told to post something everyday. Even if it was just to say, “All is well!” Okay, so I let a few days go by, but I THINK we are all at the end of this round of colds. As one takes a turn for the better, another falls [...]
I have been meaning to provide an update but since we got back everyone (except Larkin) has either been sick or has had a tooth problem (me). Alan finally went to the doctor today. His cold set into his chest and now he knows first hand what I go through twice a year with bronchitis. [...]
Karen from Canada wrote me and asked a few questions. They were good questions so I am posting them here.
1. I know you have been treating Erin with Naproxen. Did Dr. K have any comments about doing so? Positive comments? Negative? Neutral? I am curious because I tried to find a discussion of Naproxen [...]
Our visit with Dr. Kaplan was simply amazing. Our day started with each of us donating three vials of blood for FOP research. Brennan took it the worst. Alan went in to help Brennan but Brennan was inconsolable. Dr. Kaplan’s assistant waved me in to help out. I had to give him a big bear [...]
Our trip is coming to an end…finally. Our itnerary was full once we left Nashville. We are coming home with hope for Erin’s prognosis. I’ll blog more about our appointment with Dr. Kaplan once we get settled. There are so many little details and I don’t want to give false info.
From Philadelphia we headed north to Newton, [...]
Unfortunately I don’t have time to sit down and blog about our visit with Dr. Kaplan. However I wanted to post a few pictures and let everyone know that I will write about the visit in more detail. I will say one thing though, Dr. Kaplan is wonderful! We have a busy weekend with family but tonight [...]
We arrived in Philadelphia around rush hour today. I was amazed that Mapquest actually led us to the front door of the Ronald McDonald House. Alan had called PRMH earlier in the day to verify that we needed a room for the night. The house had no vacancies as expected but they put us up [...]
The kids enjoyed last night at the hotel. We went swimming and sat in the hot tub for a while. I let the boys jump and splash out all their energy, or at least I thought I did. None of the kids wanted to go to bed. It was 2AM local time before I got [...]
We are now embarking on the second leg of our trip. I’ve been getting very little sleep at night. I think Alan is lacking sleep too. My sleep at night feels more like naps. Alan, Erin, and I have been sharing a king size inflatable mattress. I am either woken up from by butt hitting the [...]
