Friends With FOP

Karen from Canada wrote me and asked a few questions.  They were good questions so I am posting them here.    1. I know you have been treating Erin with Naproxen.  Did Dr. K have any comments about doing so?  Positive comments?  Negative?  Neutral?  I am curious because I tried to find a discussion of Naproxen specifically in the Treatment Guidelines, but couldn't find it (maybe it's discussed under a different name??).   He had us fill out a questionnaire when we first arrived.  On the form, it asked which medications Erin was using.  I didn’t recognize any of the medications and none ...