We have a number of beautiful things left from Erin’s fundraising garage sale, and we’re selling them to raise funds to help pay for Erin’s continuing expenses. They are listed on craigslist as well — on this site, we’re able to post a lot more photos so that you can find just the [...]

Today I had a meeting with Erin’s preschool teacher, the OT/PT specialist, and the para in the class.  It has taken Erin much longer than I expected to warm up to the class and her teachers.  For a long time she wouldn’t talk at all.  They could tell she wanted something but she refused to [...]

I had a question asked yesterday about why we chose to put Erin in a helmet.  When I read the email I had to do a double-take because it was then did I realize that we had to make several decisions within the first few weeks of her diagnosis.   In my mind I was barely [...]

Saturday was a beautiful day.  Not only was the weather perfect but we had a great visit with the Friz family from Burnaby B.C.  We are only a three hour drive from each other but we have to cross the border to see each other.  The Friz have their paperwork in place to cross the [...]

Our beloved Aunt Fran did some research and found out another way you can help donate money towards FOP research through the Combined Federal Campaign (CFC).  If you work for the federal government, you can make a contribution to the National Organization of Rare Disorders code #11992.  Here is a part of the email that Aunt [...]

I mentioned earlier that Erin’s preschool class is participating in a fundraising event for their school.  Each student made a snowman picture and Artwork For Education turned them into greeting cards.  They are available to order online.  Go to www.artworkforeducation.com, choose “Washington” for the state, then CLC AM/PM Preschool, and finally click on Killen.  Erin’s snowman is [...]

Okay, so many urban legends surrounds the whole soda tab myth.  However, I can attest that charities do collect the soda can tabs for donations.  When we were at Philadelphia’s Ronald McDonald’s House, they had so many soda tabs, it was crazy!  So here we are, complete Diet Pepsi soda junkies (Fitness Together would not [...]

Are you on Facebook?  If so, please become a fan of “International FOP Association *IFOPA*.”  Ashley Kurpiel has started the fan page.  You do NOT need to be a member of the IFOPA to join the fan page.  Several pictures have been added and the FOP community has joined in.  Ashley is the woman whose [...]

I, for one, have truly enjoyed a “normal” week again.  We all went through our own “re-entry” phase when we got back from our trip.  With all the illness gone, Alan returning to work, the kids back to school, and I have the daycare up and running again….we all feel renewed.  Larkin has had a [...]