Friends With FOP

Our beloved Aunt Fran did some research and found out another way you can help donate money towards FOP research through the Combined Federal Campaign (CFC).  If you work for the federal government, you can make a contribution to the National Organization of Rare Disorders code #11992.  Here is a part of the email that Aunt Fran sent to me.... "I checked out the website for the National Organization for Rare Disorders.  They have published information booklets for the medical community for nine of the disorders they deal with, but not for FOP. (http://www.rarediseases.org/programs/freebooklets) Here is a quote regarding the publication of such a ...