Friends With FOP

I had a question asked yesterday about why we chose to put Erin in a helmet.  When I read the email I had to do a double-take because it was then did I realize that we had to make several decisions within the first few weeks of her diagnosis.   In my mind I was barely functioning at that time and Alan and I had to make decisions fairly quickly.  The person who emailed me provided a different perspective on the helmet issue.  Ever since reading and responding to the email, I haven't been able to get the conversation out of my ...