Friends With FOP

We're getting ready to celebrate the holiday with our family.  Between myself and Sean we tried all different ways to get Mom down here for Christmas.  I was going to go pick her up but we may get a special visit from Santa this evening.  She originally bought a bus ticket from Greyhound; however b/c of all the snow  Greyhound canceled trips.  Then Mom developed a fever so she's staying up in Bellingham.  We'll have our Christmas with her once she is better. My brothers Mike and Sean will be here to help play Santa tonight.  Erin is very much into ...

After reading about the passing of Ricardo, another adult FOPer (Robin Rice) responded to the online group and eulogized Ricardo so beautifully.  He also shared the struggles Ricardo had faced in his life.  With his permission, here is a part of the email he shared to the group.... "Ricardo & I were good friends and we emailed each other often, the last email I got from him was on December 6, he told me he just found out he had Pneumonia and the DR said it was very bad, he was getting treatment at home, I never heard from him again after that ...

I guess a good portion of the country is experiencing a cold snap (except the south from what I have been told).  We waited all day yesterday for the snow storm to push down from Canada.  A good portion of Washington received the snow but we were in a bubble that covered the Seattle area which didn't receive anything until late afternoon.  The school district even closed down with the threat of snow which finally started here in Woodinville at 5PM.  By 7:30 we had a good inch covering everything.  By 8:30 this morning we had three inches and the snow ...

I had not realized the time gap from when I posted on 12/5 until 12/15.  I was so excited to publish the last post I hardly noticed how much spam the site received in that length of time.  Something new that I learned by running this site is that there are professional spammers out there.  Funny how most of the spam the site attracts are for prescription drugs...Percocet, Vicodin, Hydrocodone, and even Viagra.  As I went to hit the "delete all spam" button, one in particular caught my eye.  It read, "I took Hydrocodone during my pregnancy and had a ...

I received an email from the producer of Ashley's FOP story for Mystery Diagnosis.  The air date is set for March 2, 2009.  Whoo hoo!!!!  Those who helped contribute to the story will receive a copy of the episode on DVD.  Double whoo hoo!!!!  I can't wait to see how the episode turned out. It has been a while since I provided an update.  Erin is doing okay right now.  She has her good days and then she has her bad days.  She's still complaining that her neck and shoulder hurt.  Erin has been taking her Naproxen like she should.  I've ...

I am SOOOO happy to announce that I have big changes planned for the website.  Alan is going to add new features AND we'll be showcasing Erin and Miranda Friz.  You'll not only get to read about Erin but also about Miranda.  Now everyone will be able to see the similarities and differences in both girls with their FOP progression.  I am really, really excited about the changes.

Another FOP family has joined up with a local civic group to host an annual bingo event to raise money for the IFOPA.  The event will be near Allentown, PA.  Save The Date! IFOPA Bingo For A Cure! Tickets are on sale now! They make a great holiday gift! Please pass on this email to everyone you know and help us find a cure! Thanks !!!!    March 29, 2009 At the Allentown Fairgrounds, Agri-Plex Hall at 1:00pm Tickets - $30 in advance or $35 at the door Ticket package includes atleast one board for each game we play! Tickets are limited so buy them early!  Last years event sold out! All ...

So I am coming to the conclusion that Erin is just a "Mommy's girl."  She did so well a few weekends ago when her Uncle Sean watched the kids while Alan and I went to Lake Chelan for our anniversary.  I ended up driving a good part of the way which included driving over Steven's Pass in a snow storm.  As I was concentrating on trying not veer off the road, my thoughts drifted to Erin on how she was handling Alan and I being gone.  In the end, she handled our separation much better than I did.  When Alan ...

The IFOPA distributed an editorial written by Dr. Kaplan and Dr. Shore.  If I can tear myself from the Twilight books this evening, I'll make another attempt to read it and post an overview.  I have posted the .pdf below. lightningbug_kaplaneditorial