I received an email from the producer of Ashley’s FOP story for Mystery Diagnosis. The air date is set for March 2, 2009. Whoo hoo!!!! Those who helped contribute to the story will receive a copy of the episode on DVD. Double whoo hoo!!!! I can’t wait to see how the episode turned out.
It has been a while since I provided an update. Erin is doing okay right now. She has her good days and then she has her bad days. She’s still complaining that her neck and shoulder hurt. Erin has been taking her Naproxen like she should. I’ve kept her inside quite a bit. In the mornings, I get her situated with a cup of milk and her new favorite movie (Barbie’s Nutcracker) while I take the older kids to the bus stop. We had some snow over the weekend and the temperature has dropped into the teens. She wanted to go out so bad to build a snowman. I told her that we didn’t get enough snow to build one. In the end she was fine with cuddling on the couch with Mommy and watching her Christmas shows.
Erin is due for an appointment with the genetic counselor at Seattle’s Children’s Hospital. That’s been on my to do list for a while but I keep forgetting. Larkin has another evaluation at the Autism Clinic at Children’s in February. He’s been evaluated for Asperger’s but the evaluation team needs several years of collecting data on him to make that diagnosis. The team did give him a diagnosis of “Mixed Developmental Delay” or something like that. Since he’s been scoring in the borderline area of Asperger’s he will continue to be evaluated annually. Lovely stuff!
Otherwise we are getting ready for Christmas. I hope to update everyone again sooner than later!
