Friends With FOP

It's been a while since I provided an update on Erin.  Bad news first...she just finished with a horrible flare up.  This one didn't last long but it was very painful.  I kept her home from preschool last Tuesday b/c she was so cranky.  I still forget to connect her crankiness to an on coming flare up.  Sure enough by Wednesday night the left side of her back started to swell.  By yesterday the swelling had started to go down and now a little knot of bone is sticking out around her scapula.  Erin now complains that her left arm is hurting.  I am ...

Just for the heck of it, I thought I'd write today about some of the adaptations we've made to our household to make it safer and easier to manage for Miranda. Fortunately Miranda doesn't at this point require a wheelchair or scooter to get around, but nevertheless she does have some issues which required different solutions. In no particular order, here's a list of some of the changes we've made to our house: - Our front entry way is paved with very hard ceramic tiles. To minimize the effect of any falls on those tiles, we've covered the entire entry ...