Friends With FOP

In the early days of Miranda's diagnosis with FOP, Pete and I tried to do everything we could to learn about it and get to know (via the Internet) people in the FOP community.  We NEEDED to do that...  It was the only way we could try to adapt.  We just had to learn how other families dealt with FOP on a daily basis, and how they didn't just survive, but live.  Everyone we communicated with was so tremendously kind and helpful, and we will be eternally grateful to them for easing us into our new life. However...  I've learned that ...