Friends With FOP

This evening Alan noticed a small bruise on Erin's left shoulder.  Sure enough, Erin has a bone spur that has caused her bruise.  The bone has a slight point on it.  I am kind of surprised she hasn't complained about it.  She has been telling me her feet and legs hurt...never her shoulder.  Even as we examined it she said it didn't hurt.  FOP is strange. In other news, Erin's grandfather (my father) was hospitalized today for heart related problems.  As you think of Erin and Miranda, please keep him in your thoughts.

Our good friend Marie Hallbert, who lives in Ekilstuna, Sweden, is someone who has devoted a great deal of time to working on behalf of people with FOP. Based on a posting of hers from FOP Online, she is set to begin doing a whole lot more. The following is a copy of Marie's recent message. Marie is not a native speaker of English, but she gets her point across very well... Hej (lecture and dental and other projects) I know that some of know a little, and a some of you are curios :) and here is my story..of what I ...

Hello, and happy New Year to all!  I'm very excited to be writing my first blog.  I will soon put some information on the site about Miranda and our family, but for now, I'll just tell you about New Years Day at our house in Burnaby, British Columbia.  Our household consists of me, my husband Pete, Miranda (will be 4 years old this month) and Owen (will be 7 years old this month). I woke up this morning at 7:30 AM to "Mommy, I have wet underpants and jammies."  Sure enough, Miranda had peed herself.  Oh joy.  This is rare for her, ...