Like Alan and Suzanne, who blogged on this subject, I was also very upset to hear about an injury suffered by our young friend. For anyone who didn’t read those blogs, there’s a boy who is age 13 and has Fibrodysplasia Ossificans Progressiva, just like Miranda and Erin. A couple of days ago, [...]

I am totally outraged that someone would willfully and maliciously attack someone with FOP, no matter how “benign” it may seem to the attacker. 

You may be able to roughhouse with your friends, but any little bump can literally paralyze someone with FOP.  Because FOP is so strange, I’m certain that the entire school is aware [...]

Safety is our number one priority with Erin (as with Miranda).  We do want we can by instilling safety measures to reduce the likelihood of a serious fall that could lead to permanent restriction/damage to Erin’s body.  Not only does Erin have her Halo helmet but a big part is communication with those who take [...]

The site may look the same, but we’ve updated the engine. 

You may have also noticed the lack of photos lately.  That was partially my fault.  When I set up the site, I gave permissions to upload photos to a particular directory, which was named “2008″.  Since 2009 happened, the system automatically created the folder, but [...]

2004 was a very good year for our family.  It started off a bit rocky when we learned that our oldest son was struggling with ADHD, some Autism symptoms, and was diagnosed being developmentally delayed.  We had planned to move to Nashville, TN to be closer to family and to take in my ailing mother.  [...]

Written by Malcom Munro
When four-year-old Miranda Friz plays outside with her little chums, her mom makes sure Miranda wears her protective headband.  None of the kids ask why she wears it.  Mom Karen Munro and dad Pete Friz told moms and dads in their street about FOP and why Miranda needs to be extra careful. [...]

Sometimes I wonder what other people think life is like with a child who has Fibrodysplasia Ossificans Progressiva.  Of course, the purpose of this blog and website is to focus on FOP, and how it affects Miranda and her friend Erin, and Suzanne and I both try our best to convey a sense of the [...]

On the weekend, Pete and I took our kids to the Vancouver Aquarium, and after that for a picnic lunch and fun at a playground in Stanley Park. It was a cold but sunny day, and Miranda had a great time running around (clutching her squeaky beluga toy the whole time). Her cheeks [...]

February has never been a good month for our family.  The weather is horrible and all the little bug-a-boos seem to make their way in and infect the family and daycare.  Now when someone becomes sick, there’s a whole new fear factor involved.  It’s now a known given that those living with FOP can have [...]

There will be a fundraiser for Fibrodysplasia Ossificans Progressiva (FOP) at Oz Pizza in Fairburn, GA.  Here are the details if you are interested in going.
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Come join me at Oz Pizza in the town of Fairburn
where I am doing a ‘Fundraiser’ for Fibrodysplasia Ossificans Progressiva (FOP) and to acknowledge the ‘Rare Disease Day’ for which [...]