Friends With FOP

There are only a few hundred known cases of Fibrodysplasia Ossificans Progressiva, or FOP, in the world. On a country-by-country basis, the numbers are miniscule - there are probably only 15 people with it in Canada (I'm personally aware of 11), and I think I read that there are about 285 in the USA. With numbers that small, it's very difficult for people with FOP and their families to have any kind of impact on governments to get them to pass laws and institute policies to help us. FOP is definitely a rare, or maybe ultra-rare, disease. There ...