Friends With FOP

February has never been a good month for our family.  The weather is horrible and all the little bug-a-boos seem to make their way in and infect the family and daycare.  Now when someone becomes sick, there's a whole new fear factor involved.  It's now a known given that those living with FOP can have nasty flare-ups from getting sick.   The flare-ups indicates the FOP is progressing by new bone growth and the possibility of new limitations.  All FOP patients are told to get an annual flu vaccine since the flu is known to further FOP progression.  Some FOPers take the ...

There will be a fundraiser for Fibrodysplasia Ossificans Progressiva (FOP) at Oz Pizza in Fairburn, GA.  Here are the details if you are interested in going. ************************************************************************************* Come join me at Oz Pizza in the town of Fairburn where I am doing a 'Fundraiser' for Fibrodysplasia Ossificans Progressiva (FOP) and to acknowledge the 'Rare Disease Day' for which I have been named the Patient spokesperson. Oz Pizza is giving 20% of all proceeds received between the hours of 5-9 p.m., Tuesday, February 24th to the IFOPA. Seating is limited and therefore I am asking my guests to RSVP, ASAP...as I need to give each ...