Friends With FOP

Sometimes I wonder what other people think life is like with a child who has Fibrodysplasia Ossificans Progressiva.  Of course, the purpose of this blog and website is to focus on FOP, and how it affects Miranda and her friend Erin, and Suzanne and I both try our best to convey a sense of the experience.  However, the fact that Suzanne and I operate this website doesn't mean either of us wanders around with FOP on the brain 24 hours per day...  Far from it. OK, let me backtrack - I shouldn't speak for Suzanne, since she's more than capable of ...