Archive for February 26th, 2009
Assault on FOPers
February 26th, 2009
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I am totally outraged that someone would willfully and maliciously attack someone with FOP, no matter how "benign" it may seem to the attacker.
You may be able to roughhouse with your friends, but any little bump can literally paralyze someone with FOP. Because FOP is so strange, I'm certain that the entire school is aware of the condition of any student who has it. There is no excuse for this type of behavior.
Assault and civil charges should be seriously considered on anyone, regardless of age, who attacks someone with FOP. Even a simple push with a finger can make them ...
Protecting Our Children
February 26th, 2009
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Safety is our number one priority with Erin (as with Miranda). We do want we can by instilling safety measures to reduce the likelihood of a serious fall that could lead to permanent restriction/damage to Erin's body. Not only does Erin have her Halo helmet but a big part is communication with those who take care of her. Before Erin's preschool started, both Alan and I met with the staff of the school to talk about FOP and what precautions were needed to protect Erin. I've blogged about this before and even posted "Erin's Medical Issues" here on the site. ...
