Friends With FOP

Yesterday I picked up Miranda at daycare, and she was full of excitement: “Guess what Mommy, tomorrow we get to do valentines! We’re going to have cookies! It’s going to be a party and we’re supposed to wear pink and red and it’s going to be so much fun!!” Her eyes were sparkling and she was practically bouncing with joy… It was just wonderful to see her enjoying herself so much, and I thought for about the hundredth time how glad I was that she had the opportunity to go to this daycare while I work. After Miranda was diagnosed with ...

There are only a few hundred known cases of Fibrodysplasia Ossificans Progressiva, or FOP, in the world. On a country-by-country basis, the numbers are miniscule - there are probably only 15 people with it in Canada (I'm personally aware of 11), and I think I read that there are about 285 in the USA. With numbers that small, it's very difficult for people with FOP and their families to have any kind of impact on governments to get them to pass laws and institute policies to help us. FOP is definitely a rare, or maybe ultra-rare, disease. There ...

I've finally gotten around to enhacing the site a little bit and installed some new plugins.  I know that there are lots of people around the world reading this page, so I've included some handy translation links to the right sidebar. Just click on your desired language (denoted by the flag) and the page will automatically translate for you!  How nifty is that? Also, you'll be treated to "similar posts" when you click on a single blog entry.