Yesterday was a beautiful sunny day, and we had met some friends at a local park.  “Mom,” said Miranda, glancing at 4 year old Hannah, “How come Hannah doesn’t wear a headband?”  My heart gave a little twist.  It wasn’t the first time Miranda’s asked this question (in respect of any of her friends), but [...]

Thirteen year old Seanie Nammock from London (UK) is a vibrant young lady living with Fibrodysplasia Ossificians Progressiva (FOP).  Here are a few articles about Seanie.

Telegraph.co.uk - Teenager Suffering from Rare Disease
Mail Online - Girl, 13, Battling Rare Disease
Metro.co.uk - Teenager Turning into Human Statue

As I prepare to write my thoughts, I read Karen’s blog from earlier and I see a reoccurring theme developing - falls.  The weather has now reached the 60 degree mark in the Pacific Northwest and the sun has actually broke through the Seattle clouds.  I welcome the warm weather because the boys need to [...]

Last Monday was Easter Monday.  It was a beautiful sunny day, so I decided to take the kids to a local playground.  Pete had to go out of town on business, so it was jut me with the kids.  When we were there, I was reveling in Miranda’s newfound physical confidence (which I’ve blogged about [...]

“OWEN!!  LET’S GO FIND EASTER EGGS!!!”
Those were Miranda’s first (bellowed) words today, Easter Sunday, upon awakening…  She whipped downstairs as fast as she could go, found Owen waiting on pins and needles in the living room, and the two of them scoured every inch of the living room and dining room looking for eggs hidden [...]

Erin has had a fantastic week.  She has had so much fun with all the Easter activities with the daycare.  To top the week off, we went to see Grandma (my mother) in Bellingham today.  I took the kids to an Easter egg hunt which was just down the street from Grandma’s apartment.  No worries…Erin [...]

Once again, I have fallen behind on my blogs about Erin.  Spring Break is here and the daycare is keeping me busy.  Since my last post Erin had a streak of bad luck.
From my last post, Erin had started another round of Prednisone (steroid) because of an injury to her right shoulder (the one shoulder [...]

Spring has finally arrived in Vancouver - hooray!  We’ve been really ready for it in our house, I can tell you that.  It’s been a LOOOOONG winter.  Consequently, we enjoyed the beautiful weather and spent a big chunk of this weekend outdoors.
On Friday, I took Miranda and Owen to a playground for a while.  Of [...]