Thirteen year old Seanie Nammock from London (UK) is a vibrant young lady living with Fibrodysplasia Ossificians Progressiva (FOP).  Here are a few articles about Seanie.

Telegraph.co.uk - Teenager Suffering from Rare Disease
Mail Online - Girl, 13, Battling Rare Disease
Metro.co.uk - Teenager Turning into Human Statue
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