Friends With FOP

Thirteen year old Seanie Nammock from London (UK) is a vibrant young lady living with Fibrodysplasia Ossificians Progressiva (FOP).  Here are a few articles about Seanie. Telegraph.co.uk - Teenager Suffering from Rare Disease Mail Online - Girl, 13, Battling Rare Disease Metro.co.uk - Teenager Turning into Human Statue