Friends With FOP

"Better treatments for FOP are not just a dream - they are now likely, and a cure is a distinct possibility."  - The Eighteenth Annual Report of the Fibrodysplasia Ossificans Progressiva (FOP) Collaborative Project, page 64. There are lots of terrible things about FOP.  However, as rare diseases go, there's one really, really good thing about it: FOP is being researched and gradually conquered, inch by treacherous, frustrating inch. The FOP Collaborative Project is a group of medical/scientific researchers who are putting their all into trying to understand FOP and design effective treatments for the disorder.  The heart of the group is ...