Friends With FOP

One year ago today Alan and I received the call from the genetic counselor.  Erin's DNA test has come back positive for FOP (Fibrodysplasia Ossificans Progressiva).  I know I had convinced myself that the swelling could be some type of a lymphoma issue.  I still remember the day when Alan said, "I hope this isn't that disease that turns muscle into bone."  I thought that would be much worse than a cancer diagnosis.  By this time last year, as we waited for the test results, we were trying to come to grips with the potential FOP diagnosis.  Approximately 5:30 on ...