Friends With FOP

Today I was thinking about what to blog about this week, and at first nothing came to mind.  I couldn't think of anything FOP-related that happened  to us recently - it's been just a regular hot, summery sort of July.  But...  On further reflection, I then realized that was wrong.  FOP actually did affect a number of things in our lives this week, just like it always does. I can't tell you what an enormous relief it was when I was finally able to get past the trauma of having our child diagnosed with Fibrodysplasia Ossificans Progressiva.  For many weeks after ...