Like most cities, Vancouver has a late summer/early fall fair which happens for a couple of weeks each year.  It’s called the Pacific National Exhibition - more commonly known as the “PNE”.
Pete and I haven’t been to the PNE since before the kids were born.  Owen was too young for a while, and then Miranda [...]

It’s official…Alan accepted a job yesterday. In today’s job market, he had to take a position that is several steps back from what he has done for the past several years. The position doesn’t warrant the type of salary he used to bring in either. BUT…he doesn’t have to commute too far [...]

In this economy, fundraising has been tough for the IFOPA.  I wanted to do something for the IFOPA but with our financial situation, we are unable to do much.  However, I have a wonderful neighbor who is a PartyLite consultant.  She has offered to donate her commission to IFOPA for all sales purchased in Erin’s [...]

Yes, it has been quite a while since I posted an update on Erin.  The old saying, “no news is good news” rings true in our home.  Erin has had a great summer and has been flare-up free for almost three months.  She did have a fall or two but nothing serious.  Even I have [...]

Last August Alan came across a media press release about Starlight Foundation in Los Angeles, CA.  Alan contacted Starlight and they directed us to their Seattle chapter.  Starlight does many things for seriously ill children.  From sponsoring game consoles at childrens hospitals to sponsoring family events, their goal is to make a difference in the [...]

This week I couldn’t come up with a unified theme…  So, I’m going to talk about a bunch of things going on recently in the Fibrodysplasia Ossificans Progressiva community.
First, in our little corner of the FOP world - a new flare-up.  I keep hoping Miranda will enter one of those multi-year “remission”-like phases I’ve heard [...]

We just returned from our summer vacation.  It was GREAT!  We had a wonderful time, and as the title of this blog indicates, Fibrodysplasia Ossificans Progressiva didn’t come on vacation with us.
OK, let me be more accurate - during the two weeks we were away, Miranda didn’t have any FOP flare-ups.  That’s a better [...]

In May of 2008, I was working at home one day when we received a letter from the International FOP Association.  I read the enclosed letter, and was very interested to learn that a family in London, Ontario was trying to rally Canadian families to form a Canadian FOP organization.  Fast forward to the present, [...]