Friends With FOP

In May of 2008, I was working at home one day when we received a letter from the International FOP Association.  I read the enclosed letter, and was very interested to learn that a family in London, Ontario was trying to rally Canadian families to form a Canadian FOP organization.  Fast forward to the present, 15 months later, and during the last few days I've been doing paperwork connected to the group we created.  Naturally, this has made me think a lot about the Canadian FOP Network... When we received the letter, I was delighted.  We had been part of the Fibrodysplasia ...