Friends With FOP

This week I couldn't come up with a unified theme...  So, I'm going to talk about a bunch of things going on recently in the Fibrodysplasia Ossificans Progressiva community. First, in our little corner of the FOP world - a new flare-up.  I keep hoping Miranda will enter one of those multi-year "remission"-like phases I've heard about, where the person has no flare-ups for a very long time, but so far 3 months has been her longest time flare-up free.  Sigh.  Anyway, earlier this week Miranda commented that her tummy was sore.  She mentioned this a couple of days in a ...