Friends With FOP

Yes, it has been quite a while since I posted an update on Erin.  The old saying, "no news is good news" rings true in our home.  Erin has had a great summer and has been flare-up free for almost three months.  She did have a fall or two but nothing serious.  Even I have reduced my anxiety over her tumbles.  Erin still panics when she isn't stable on her feet but she's getting better with catching herself. I can't remember if I mentioned this but Alan and the boys fixed up the backyard in early June.  We removed what sod ...

Last August Alan came across a media press release about Starlight Foundation in Los Angeles, CA.  Alan contacted Starlight and they directed us to their Seattle chapter.  Starlight does many things for seriously ill children.  From sponsoring game consoles at childrens hospitals to sponsoring family events, their goal is to make a difference in the lives of sick children.  Erin's application was accepted in August/September 2008 and most of their events had past.  This summer we have been able to take full advantage of the program.  As spring approached, I began receiving emails about their Great Escapes events.  Here is ...