Before I had a child diagnosed with Fibrodysplasia Ossificans Progressiva, I wasn’t much into fundraising for anything…  I did it when I had to,  if a friend or family member roped me into participating, but that was about it (and I didn’t put a whole lot of energy into it).
Now, however, fundraising has taken on [...]

Last weekend my good friend Suzanne hosted an event at her house to raise money for the International Fibrodysplasia Ossificans Progressiva Association (IFOPA).  I figured this would be a good opportunity for a visit with the McCloskeys, so I packed up the kids and we drove down to Woodinville, Washington for the weekend (just us [...]

It’s that time of year when parents run around and buy a pile of new clothes for their kids in honour of the new school year…  That includes me - I’ve recently been following that time-honoured tradition. Miranda’s older brother Owen is about to start grade 2, and needed some new stuff.  Miranda herself, however, is not [...]