Friends With FOP

Before I had a child diagnosed with Fibrodysplasia Ossificans Progressiva, I wasn't much into fundraising for anything...  I did it when I had to,  if a friend or family member roped me into participating, but that was about it (and I didn't put a whole lot of energy into it). Now, however, fundraising has taken on a whole new importance.  To put it as plainly as possible, I HAVE to fundraise for research into a cure or effective treatment for FOP.  There's very little available right now to treat FOP, and the medications which do exist have very limited application and effectiveness.  And, ...