Friends With FOP

When Miranda was diagnosed with Fibrodysplasia Ossificans Progressiva, one of the earliest things we learned is that it's a very rare disorder.  In fact, FOP affacts about 1 person in 1.6 to 2 million.  That means the chance of any random person having a child with FOP is way, way under 0.01%...  My mind still reels when I reflect that I have a child with such an ultra-rare condition. The people who research FOP, the scientists at the Centre for Research into FOP and Related Disorders (aka the FOP Lab) at UPenn, are aware of about 700 people worldwide with FOP.  By population prevalence in ...