Friends With FOP

By Karen On Friday of this week, our family took a trip to the Vancouver Aquarium.  It happened that all four of us had a rare convergence of a day off work, school, etc, so we decided to go.  What does this have to do with my daughter Miranda's Fibrodysplasia Ossificans Progressiva, you may ask?  The answer is: pretty much nothing! Which is a very good thing...  What our family aims for is life in which FOP plays as little a role as possible in our day to day activities.  And, as Miranda grows older and more steady, more responsible for herself, ...