Friends With FOP

Posted by Karen In this blog, I spend lots of time talking about how our family lives and copes with our daughter Miranda's FOP.  I try to convey the sense that despite FOP, Miranda has a terrific life and is just like any other little girl.  And that stuff is true...  It really is.  I love my little sweetie and have great optimism about her future, just as I do for my son Owen.  Miranda is a wonderful, happy, energetic and bright little girl, and I think she'll have a great life. But...  The fact that we've integrated Fibrodysplasia ossificans progressiva  into our lives, ...