Archive for December 27th, 2009

The holidays, gratitude and almost no FOP

December 27th, 2009

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Posted by Karen Hey everybody, HAPPY HOLIDAYS!  Before I tell you how much fun our festivities have been so far, I want to give a really big, heartfelt thanks to all my friends and family who donated recently to the Canadian FOP Network.  Your donations mean so very much to us...  Research into FOP is largely funded by private donations, since pharmaceutical companies aren't much interested in a tiny "orphan" disease like Fibrodysplasia ossificans progressiva.  And yet, according to the scientists at the Centre for Research into FOP and Related Disorders, the single genetic mutation which causes FOP is a very promising target for pharmaceutical ...