Friends With FOP

Posted by Karen 'Tis the time of year to do countdowns, lists, reviews, etc of all and sundry which happened in the previous 12 months.  And so, with that theme in mind, here's what happened in respect of Fibrodsyplasia Ossificans Progressiva in our household in 2009... First, and most importantly, I can say with relief that a very significant thing DIDN'T happen - in 2009, Miranda had no new joint fusions.  Phew...!  I am delighted that she made it through the the year with little happening by way of FOP activity in her body.  Yes, Miranda had a handful of smallish flare-ups on ...