Archive for January 24th, 2010

School and FOP

January 24th, 2010

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Pretty soon I'll be registering Miranda for kindergarten...  Wow!  My girl is getting so big.  Kids with Fibrodysplasia Ossificans Progressiva have a variety of different experiences with school.  A lot may depend on the age of the child when FOP became symptomatic and was diagnosed (hopefully soon afterward, but it doesn't always work out that way - a whole other story).  If the child is diagnosed with FOP at a young age (ie, pre-school) as Miranda was, then parents need to put some thought into what level of assistance, if any, the child may need to attend school.  Of course, for home schoolers the ...