Friends With FOP

Posted by Karen This week we had a couple of experiences which got me thinking about the approach we take to life with Fibrodysplasia Ossificans Progressiva. Let me start by saying that I'm pretty content with "where we are" in terms of having accepted FOP.  Neither I nor any of my family are depressive or downcast by nature, and so we didn't spend forever wallowing in sadness after our Miranda's diagnosis almost 3 years ago.  Yes, we struggled with it, and had to work stuff through, but after several months we got to the point where we could happily carry on with life.  ...