Friends With FOP

Posted by Karen When your child has just been diagnosed with Fibrodysplasia Ossificans Progressiva, you hear a whole lot of doom and gloom...  "One of the most disabling disorders known to mankind", "horrific disease", blah blah blah.  All that stuff is very, very hard to take.  You feel like your child has been handed some sort of biological prison sentence, and that it's nothing short of a disaster.  You feel like no-one has a bigger burden to bear. It eventually happens, however, that you get a bit of distance from the diagnosis.  And, you begin to realize after a while that compared to some ...